I feel your pain. My 34 year daughter has been diagnosed with CNS, Lupus that attacks your brain. Her disabilty is so severe whe was granted SSID in only 18 months. On ongoing prognosis is not good. She is probably about as good as she's ever going to be, it's all down hill from here.
Yet, I will not give up. She is smart, she is strong, she has the desire to be here for her family, her daughter. She WILL be a survivor, a "poster child" for all that need to survive this disease. She will raise her daughter, our grandchild, teach her about love, family, food, and everything else that is important in life. I believe, you cannot convince me, or other parents, we cannot believe. Believe in the ultimate miracle, whether religose or medical. We know it's around the corner.
Stand fast, fight the good fight, you are not alone!
